We have the great pleasure to invite you to the upcoming meeting of the Interest Group on Brain, Mind and Pain and Interest Group on Mental Health, Well-being and Brain Disorders.
Please find the agenda below.
12.00h Arrivals and Registration
[Note: Please assemble in the foyer of the ASP Building before 12.00h to be escorted to the meeting room, where a sandwich lunch will be available from 12.15h]
12.15h Networking Lunch
Chairperson: Ann Little, President, European Federation of Neurological Associations
13.00h Opening Address: Marian Harkin, MEP and Interest Groups’ co-chair
13.10h OUR PERSONAL EXPERIENCE OF STIGMA
What stigma means to me and my family: What should be done?
THE PATIENT: Liisa Mikkonen, Person affected by chronic pain
THE PARENT: Andrea Bilbow, OBE, Parent children affected by ADHD
THE CHILD: Emily Benson, Daughter of person affected by Dystonia
13.40h THE EVIDENCE OF STIGMA
Prevalence & impact of stigma in the wider patient community: What can we do?
BRAIN: EFNA Patient Experience Survey, Prof. Matilde Leonardi, Neurologist, Besta National Neurological Institute
MIND: GAMIAN-Europe Pan-European Stigma Survey – Paul Arteel, Executive Director, GAMIAN-Europe
PAIN: Patient Pain Pathway Recommendations – Joop van Griensven, President, Pain Alliance Europe
14.10h Keynote Address: Jürgen Scheftlein, DG-Santé
4.20h Discussion of future plans– with comments from MEP co-chairs and the audience