Last Thursday, PAE hosted a members-only webinar, Transforming Research Data Into Advocacy Campaigns: How To Amplify The Voices Of People In Chronic Pain, to teach our members how to advocate effectively at the national level. The proposed training aims to ensure that our members understand the latest developments at EU level and are able to speak up in a timely manner with a coherent and consistent message.

The webinar featured high-level speakers including Deirdre Ryan (PAE President), Dr Laura Mackey, (Project Officer of the National Office for Research Ethics Committees), Elizabeth Cunningham (Communications Manager of the European Federation of Neurological Associations), Prof Antonia Barke (Consultant to the IASP ICD -11 team), Marian Nicholson (PAE Board Member and Director of the HVA Charity and Shingles Support Society) and Sam Kynman (Executive Director of the European Pain Federation EFIC).

Topics ranged from translating health data into language the public can understand, to examples of effective advocacy campaigns, an introduction to the ICD-11 classification, presentation of the two most recent PAE survey results and how to link issues to EU or national policy.

The last part of the webinar included a group exercise where participants used the results of the PAE surveys presented to create an advocacy campaign that builds on what they learned in the first parts of the training. A report of the meeting and the speakers’ slides will be sent to all our members shortly.

We would like to thank all the speakers and participants for attending this webinar. We would also like to thank Pfizer for sponsoring the webinar.

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