Trigeminal Neuralgia Association UK
Chairman: Jillie Abbott
Vice President: N/A
Secretary: Cathy Fletcher
Treasurer: Jeannette Moore
Member: 8 other Executive Committee members
Other: Prof Joanna Zakrzewska, Clive Clifton, Jan Bruten, Anna Lacey, Tricia King,
Anna Hopkins, Michael Grimes and George Cunningham
The Association was formed in 1999 by a patient, Elisabeth Boulot, and a medic specialising in Trigeminal Neuralgia, Prof Joanna Zakrzewska, to offer support and encouragement to sufferers and became a registered charity in 2002. TNA UK receives no Government or substantial corporate funding and is entirely dependent on membership fees and donations. All the officers of the Association give their time voluntarily and TNA UK now has a membership base of 1,240 patients, and receives enquiries from dozens of sufferers each week.
The Trigeminal Neuralgia Association UK exists to provide support and encouragement and a forum for patients and their supporters. Its aims are to collate and share information and research material about TN and its treatment options, and to promote awareness and understanding of TN amongst the general public and healthcare professionals.
It is hoped that PAE and the European Public Affairs colleagues will seek to raise awareness of pain patients, particularly those with rarer, lesser-known conditions, and promote the activities of all organizations that support chronic pain patients throughout Europe in order to improve faster diagnosis, correct treatment pathways and effective pain management. In order to achieve this, we trust PAE will not only provide support to those in pain by addressing the fundamental causes but, as importantly, help sufferers to manage and ameliorate pain where possible, by promoting better pain pathways and pain management. We hope the Alliance will signpost people to TNA UK and the other appropriate charities, seek to identify and promote the appropriate centres of expertise and provide diagnostic tools for healthcare professionals where these do not already exist.