Suomen CRPS ry

Name of the organisation: Suomen CRPS ry (Finnish CRPS Association)
Abbreviation: –
Street: Kalpatie 3 A 2
District: 61500 Isokyrö
Country: Finland
Tel: +358 44 3278 896 or + 358 45 6360 358
E-Mail: puheenjohtaja.crps@gmail.com
Website: www.suomencrps-yhdistys.fi
President name: Kai Lehtimäki
Vice President name: Eila Hautala
Secretary: Erika Laatunen
Treasurer: Paula Karimäki
Deputy board member: Keijo Salho
Suomen CRPS ry (The Finnish CRPS Association) was founded in 2013 (reg. 2014) when a group of CRPS related people recognised a need for an association for people living with chronic CRPS, as CRPS is quite unknown in the Finnish healthcare system and by the patients themselves. We work alongside with the Finnish Pain Association.
The association’s aims are to act as an advocate for the people with CRPS, promote CRPS research, treatment, and rehabilitation, inform about various issues related to CRPS, and develop peer-to-peer group activity together with public healthcare.
The Finnish CRPS Association offers a possibility for the CRPS-patients and their families to participate in various events, like lectures and training and supplies literature and other CRPS related material to patients. The goal is to respond the members’ lack of social networking and missed opportunities for active life by arranging peer groups nationwide, regional events, as well as having peer-to-peer support phone, e-mail system and closed Facebook group.
The Finnish CRPS Association is a non-profit organization.
Our aim is to improve the conditions of people living with CRPS by increasing the knowledge on CRPS and its impact on everyday life. The Finnish CRPS aspires to develop cooperation with home, work, environment, politicians and especially with healthcare organizations. Important elements are information, skills and a willingness to help.
The Finnish CRPS Association is determined to abolish the barriers for people living with CRPS and to enable them to live an as normal and full life as possible. We can achieve this together with healthcare professionals, authorities, politicians, associations, and foundations by improving social security, medical treatment, rehabilitation and other services for CRPS patients.
To increase awareness and continually improve CRPS-patients, healthcare professionals and third parties’ knowledge about CPRS, decrease the stigma and generally advance the issue of CRPS.