Galician Rheumatological League (LRG)
CHILDREN AND RHEUMATIC DISEASES
The Galician Rheumatological League (LRG) organized a workshop for children with rheumatic diseases and their parents.
In March, the LRG organized a workshop on the Management of Irritability for members who suffer from Chronic Pain
SOCIETAL INFORMATION CAMPAIGN
In April the LRG organized 3 more informative and preventive sessions about rheumatological diseases. In these conferences, we normally get the participation of a rheumatologist, a board member, our occupational therapist and/or our psychologist.
MEETING WITH HEALTH AUTHORITIES
Our President Ana Vázquez and 2 members of our technic workers attended a meeting with Galician Health Authorities regarding the electronic platform, called E-SAÚDE, where Galician residents can access their health issues. We were promised that associations will participate in the further development of the E-Platform.
CONGRESS OF PRIMARY CARE DOCTORS – PATIENTS YESTERDAY, PROTAGONISTS TODAY
The LRG was invited to participate in the 5th National Congress of SEMERGEN (Spanish Society of Primary Care Doctors). The Congress took place in Pontevedra on May 4th and 5th. Six of our members attended.
Our president participated in a roundtable debate on the topic of electronics in health care. (see the picture below).
Our League presented a poster about insertion in the workplace for people with Rheumatic diseases.
There were workshops about Doctor Google, rheumatoid arthritis, etc
There were several interesting roundtable debates about mental health, rare diseases, the 4 different types of osteoarthritis and their treatment, the electronic platform which all Spanish people can use about illnesses and patients of our autonomic region of Spain can contact about their personal health file.
On May 3rd, about 150 persons attended a concert of the group PRIME MINISTERS. The objective is awareness of rheumatic illnesses amongst the youngsters.
FUTURE OF EUROPE WITH ITALIAN AMBASSADOR
On May 8th, we were invited to attend a conference about the future of Europe in Santiago de Compostela, by Mr Stefano Sannino, the Italian ambassador in Spain. The photograph at the left shows the ambassador, the vice-president of the Galician Government, the vice-president of our League, Mrs Antonia Pombo and Jose León, our general manager.
NATIONAL PLATFORM OF INCAPACITY
On May 8th in our office, we had a meeting with the Galician Delegation of the National Representative Platform of Persons with Physical Incapacity. This entity has existed for 30 years and offered us diverse activities (accessible holidays, information about accessible sites, tourism and bars/restaurants, etc.) for our members. They represent almost 100,000 persons with physical incapacity.
MEETING WITH THE MAYOR OF TOWN
The mayor of our town and other local authorities visited the Civic Centre in Coruña where our League has its headquarters in order to know the needs of the people of that part of town. Our president and general manager were invited too and explained the structural ameliorations the Centre needs.
On May 17th, the Day of Galician Language, the LRG, together with the Club Maristas, organized a charity run in that school of Coruña, in order to join funds for our social health programmes and for the visibility of RMDs. There were several competitions in different categories. There were medals and gifts for the children.
MUSIC IN SUPPORT OF THE LRG
On May 20th, we enjoyed the first of a series of rock concerts which the group “7 SETENTA” will perform in our whole autonomic region, in order to help us with making RMDs more visible and to fundraise for our League. Many people in the town of Ribeira had a great time with a party day to support the League, with tapas, donations, selling chocolate bones and enjoying Rock and Roll.
SCHOLARSHIP FOR WEB
Our League has been selected by a Foundation, together with 9 other big social entities in our Autonomic Region of Spain, to receive an important scholarship to ameliorate/recreate our web regarding structure, design, and functionality. On May 30th the Official Reception took place, with an article in newspapers.
MEETING WITH AUTHORITIES
On May 30th, our city government started an initiative to create a Sectorial Advisory Board of Health, so they can become an observer of the Health of the Citizens, relying on different health agents – such as patient associations, institutions, and authorities involved in health. It will also serve to offer solutions to more specific aspects of our city, but from several points of view (health in the workplace, environmental health, etc.)
On June 6th we had a conference about sexuality and familial planning, for people with a rheumatic illness.
On June 9th LRG has organised a conference with a collaborating rheumatologist about biologic treatment for members of our League.
During the weekend of June 10 and 11, the LRG, organized – as part of its recreational activities – a weekend in a spa and visit to another region in our Autonomic region (Ribeira Sacra).m This was a weekend of rest and fun spent with friends and family.
On June 18th a festival OUR STARS (AS NOSAS ESTRELAS) took place in order to obtain funds for the LRG. About 20 youngsters danced and sung in a contest presented by Miss Spain 7 Continentes, Zulema Vázquez. Then a video about the LRG was projected.